Greetings
I'm still here - not much change in the way I feel. Still got the pain in my leg and in my mid section. Much of the pain is a surface pain now, kind of like shingles if you've ever experienced that.
I'm going to try something new starting next week. There's an immune enhancer that doesn't seem to have the serious side effects like some of them. It's call Pazopapib or Votrient. It's taken orally in pill form once a day. It's not a cure (cause there doesn't seem to be one), but it could prolong things. It's also very expensive. Glad I have some pennies saved up.
They did blood work this morning on me to get a base line for this votrient.
Had lots of company this week. It's nice to do some visiting. I'm getting sleepy right now. I threw up a lot this morning so I don't know what's left in my body. Take care and remember me in your prayers.
Jim
Friday, March 23, 2012
Tuesday, March 13, 2012
3/13
Someone reminded me today that I hadn't entered anything on my blog for a while. Sorry about that.
There really isn't much change over my last entry. I had the 8 gray radiation on my testicles last Wednesday. No pain, but I really wouldn't describe it as a fun experience. I'm experiencing pain in my abdomen which I guess could easily be the result of the testicular thing. Since it takes about three weeks to get the full effect of the radiation, I'm not feeling much different there.
My leg hasn't bothered me much the past few days. I'm hoping that the radiation on that did do something. I'm able to get some good sleep in. I usually wake up in the night, take an oxocodone, and work on my computer or on clarinets for 45 minutes or so. The pain subsides and I can usually fall right back to sleep again.
I am using that Fentanyl patch so I've cut way way back on the oxocodone. Unfortunately the Fentanyl is a narcotic just like the oxocodone.
My appetite has been fairly good. Since I've lost 50 pounds since last summer, that's good. I'm trying to eat stuff to put a little weight back on, but that isn't happening.
I guess I'm on hold right now medicall speaking. I see my oncologist in a couple of weeks.
I've had company off and on, and have enjoyed very much the visits. Please keep me in your prayers.
Jim
There really isn't much change over my last entry. I had the 8 gray radiation on my testicles last Wednesday. No pain, but I really wouldn't describe it as a fun experience. I'm experiencing pain in my abdomen which I guess could easily be the result of the testicular thing. Since it takes about three weeks to get the full effect of the radiation, I'm not feeling much different there.
My leg hasn't bothered me much the past few days. I'm hoping that the radiation on that did do something. I'm able to get some good sleep in. I usually wake up in the night, take an oxocodone, and work on my computer or on clarinets for 45 minutes or so. The pain subsides and I can usually fall right back to sleep again.
I am using that Fentanyl patch so I've cut way way back on the oxocodone. Unfortunately the Fentanyl is a narcotic just like the oxocodone.
My appetite has been fairly good. Since I've lost 50 pounds since last summer, that's good. I'm trying to eat stuff to put a little weight back on, but that isn't happening.
I guess I'm on hold right now medicall speaking. I see my oncologist in a couple of weeks.
I've had company off and on, and have enjoyed very much the visits. Please keep me in your prayers.
Jim
Friday, March 2, 2012
3/2/12
Can't sleep again. I had lots of pain on Monday, so after calling around, we ended up at ER at Sunnyside. I had been switched to morfine the Friday before and not only did it not do me any good, it also made me nauses. The doctor at Sunnyside took me off and we went back to osocodone.
It was also determined that the cancer was in my testicles, so I got in to see the radiologis yesterday. Sure enough. They are going to "light me up" there next. Appointment is Wednesday. It'll be a one shot 8 gray radiation. Gives me something to look forward to over the weekend.
They also changed by pain meds. I now have a 36 hour patch called Fentanyl Transdermal system. It's not supposed to kick in for 12 hours. It did kick in yesterday right on schedule and I was ready to go skydiving. Unforunately it didn't last. I know you thought I always get up at 4:00 AM. I was doing store work, but had to keep correcting things.
If any of this dosn't make sense, I'm really tired.
Take care - I'm going to say a couple more prayers and try to sack out again.
It was also determined that the cancer was in my testicles, so I got in to see the radiologis yesterday. Sure enough. They are going to "light me up" there next. Appointment is Wednesday. It'll be a one shot 8 gray radiation. Gives me something to look forward to over the weekend.
They also changed by pain meds. I now have a 36 hour patch called Fentanyl Transdermal system. It's not supposed to kick in for 12 hours. It did kick in yesterday right on schedule and I was ready to go skydiving. Unforunately it didn't last. I know you thought I always get up at 4:00 AM. I was doing store work, but had to keep correcting things.
If any of this dosn't make sense, I'm really tired.
Take care - I'm going to say a couple more prayers and try to sack out again.
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